Tuesday, June 25, 2013

Sorry I haven't posted in a LONG time.

So over the next week or so I will try to update everything that has gone on in the last 2 years A lot has happened in that time. I apologize to those who have been following and need to know they are not alone in their journey thru this. Lately I feel God has put it on my heart to start this up and update and keep this going for those of you out there going thru the same thing as I did. I have had a few people of late comment and that has made me want to keep this going. I will try to fill in the last two years as best I can. I look forward to hearing all you comments and I will try to respond as I always have. So we go back to May of 2011 I was working at Starbucks and thing were going well for awhile till the pain in my neck started to effect my work. I was unable to continue PT as I was out of visits for the year already and the denied my request for more. I had gone to my pain doctor to try to find an alternative to treat the pain and help with my fingers going numb all the time. The only thing at that time we could do was continue pain meds I was taking morphine twice a day as well as oxycodone 3-4 times a day as well. The pain was starting to get worse. It got to the point that I ended up having to go on disability from work. I was not happy but I did get some pay from the benefits I had at the time. When I went back to pain doc again we sat down and talked about other ideas to try and this is when i found a brochure for a spinal cord stimulator. He said before I could do anything like that we had to exhaust all other remedies first. In other words to get the insurance to pay for it we had to show that the other ways were not working. This was now getting to be mid August 2011. In September I had my first epidural injection into the epidural space in my spine. This almost hurt more than the pain I had every day. It was horrible. After the procedure though my pain subsided for about three weeks. It felt amazing. I didn't hurt nearly as bad as I had for so long I was very happy with it, even though it hurt like hell. Through all of this time as well I was going to see a therapist as well to help with my depression. It was helping a little but then I started to have night terrors and would scream in my sleep. I couldn't sleep well and some nights not at all. The doc suggested a sleep aide to help as well as another med which I cant remember the name of for the night terrors. This did help me sleep but it knocked me out for 10-12 hrs a night. This combined with the pain meds was not a good combo. I was like a zombie most days. I was there but not there. By Sept I all of the sudden had all of pain come rushing back overnight. The epidural injection wore off almost instantly. So back to the doctor office again. the injections had to be a series of three. So I had to go thru the pain of on again. But I was ok with it because it would be worth it to be almost pain free for another few weeks. But this one didn't work at all. So he had me come back for the third on about a week later. Again this one failed as well. Not sure why but I got absolutely no relief from either of them at all. This is when we finally able to talk about the stimulator be placed in me.

8 comments:

  1. Thank you for this site and for sharing the adventure of your life post injury. The Universe is full of coincidences that constantly amaze me. You only started commenting here today after a long span of time and it was today that I started to look for such a site. A friend of mine had a sky diving accident this past weekend and is dealing with a C1 injury. I was looking for resources to give me an idea of what kind of support he would need. Your words are very helpful. I'm sorry that you are struggling with pain -- I live with chronic pain (from other causes) and know how tricky it is to manage pain and still have a quality life. It is most definitely possible! I learned to relax on my "bad" days and gradually increase activities during my "good" periods. It's a balancing act that can be overwhelming at times, but hang in there. It sounds like you are doing all the right stuff!

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  2. This is the internet age. I have read SO much about broken neck injury and recovery since my accident...too much no doubt. But, your blog is the most down-to-earth example of useful information for folks in our situation. Thanks so much for this. I wish I had done the same thing form the start! Kudos!

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  3. Hi, i am read your story about your life after broken neck. this is little information for you and it may help you in future. back pain relief treatment in Canada is a non-invasive pain therapy treatment for individuals desiring general physical health maintenance and enhancement or relief from chronic pain.

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  4. Aww. That really sounds terrible. Anyway, have you tried consulting another doctor? It seems like the pain you're going through had worsened instead of getting some relief from your medications.

    #Shan@BrandonChiropractor.net

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  5. Hi there Bryan.

    It's a long road to recovery isn't it? My accident was also in 2011, in March. So in a pretty similar space as you with my recovery.

    Also live with much pain, but manage it with pain meds (strong ones) when I need to. Interesting to read you also have continued pain. I sure do miss my old neck, but am back riding my motorbike which is how I broke my C2, and not letting anything limit me. Call me stubborn ;)

    www.katiepie.webs.com

    Hope you get some relief from your pain soon. I have been told by a few others that it was about 4-5 years until their necks settled down and they felt normal again. We are doing well over 2 years into ours, but may have to be patient in the "full recovery".

    :) Katie-Jane Bowen - New Zealand

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  6. Hey mate I recently fractured C5/C6 and my voice box, plus a tear to Liver/Kidney. I read a little of your blog and felt I could identify with your depression Pain and other frustration met from the medical teams around the country. I was knocked off my motorcycle at 60mph. I am going thru loneliness abandoness feeling unloved feeling I would have been better dead Pain disfigured odd looking stumble when walking unable to pick up small item numbness in fingers(INDEX) tips oh the list is long as to how I feel most of the time. Colin - LOndon UK

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  7. Hi Bryan,
    I fractured my C1 front & back when I flew over the bars of my road bike on Dec 7, 2013.
    The doctors decided to install 6 titanium screws from the base of my skull, bypassing my blow C1, & into my C2. I'm out of my rigid neck brace (8 wks) and into my PT occasionally wearing my soft collar (for walks & when I'm driven around). The PT started 3 days ago & I was blown away by how little range of motion I have. 9% from center to left & from center to right. Down is better; up sucks (& that's what I need to ride again).
    I will through myself into PT - 10 reps of each of (4) motions five times a day - increasing as I can. I was told I would most likely lose 50% range of motion (ROM) but it's hard to accept at this point. I was wondering how soon you (or other reading your very helpful blog) began driving after your accident, assuming you are driving. The doctor supposedly told me that, with the surgical option taken (hardware construct) I may never drive again but I refuse to believe that. Thanks in advance for your additional information.

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  8. I fractured my C2 and chipped my C3 in 1984. I started having problems with it about 3 or 4 years after. It has progressively gotten worse. I had the cervical epidurals and it was wonderful but only last about 40 days. They suggest having that every 3 months. So getting back to being able to handle the pain again where I could function at work took a couple of months. I did have it done twice, both times wonderful, but opted not to get it done anymore due to the transition period and my concern on being a pin cushion in one area. I had facet injection which helped some, Rhizotomy that helped but not as good as the epidural but they lasted for about 6-7 months. I am getting the temporary spinal cord stimulator installed in less than a month. I am praying that it works and it also takes care of my headaches. I have a terrible time trying to concentrate at work....it hasn't been much fun. I shouldn't complain too much...most people die with a C2 fracture. I guess God has some plans for me too :) I will pray for all of you!!!!

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